I've met children that have died from this disease. I've followed the stories of lots of kids that have died from this disease. Gemma was different. I'm always sad when I hear that they are gone, but with Gemma we had a special bond. We met her and her wonderful family this past Fall in NYC. She was an amazing and beautiful little girl from Barcelona. She immediately found a place in our hearts and in a short time we grew to love her.
Gemma died on January 25, 2007.
Goodbye, Gemma. We love you.